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Andrea Johnson



Andrea Johnson became vested in CMV awareness and advocacy when her son, Axel, was born with congenital CMV (Cytomegalovirus) in June of 2016. Since receiving Axel’s congenital CMV diagnosis Andrea has become an active member of the Board of Directors for IL Hands & Voices and currently holds the board President position.  She is also an active member on the patient education and outreach committee for the National CMV Foundation, serving on the parent planning committee for the 2018 CMV Public Health and Policy Conference, hosted a CMV Awareness fundraiser in her hometown that raised $5,300 for NCMVF, a parent liaison volunteer for Ann & Robert H Lurie Children’s Hospital of Chicago, and a parent advocate for Cochlear Americas. Andrea has presented on CMV at the 2018 Hands & Voices Leadership Conference and 2018 EDHI Conference and has had several articles on CMV published on CMV as well as keeps a blog called, Axel’s Journey With CMV, on Facebook.   Andrea lives in Montgomery IL with her husband Adam and children Axel and Alivia.

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